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Raising Awareness for Rare Diseases

POLITICO Studio - Sanofi

Eyes-Screen partnered with POLITICO Studio and Sanofi to tell the story of Benny J. The film sheds light on the challenges of living with a rare disease, aiming to make tangible the everyday realities faced by those navigating these conditions, while emphasizing the importance of visibility, innovation, and support in healthcare.

Shot in Luxembourg, the narrative combines Benny’s personal journey with his connection to art, illustrating how creativity can foster advocacy for rare conditions. Through intimate interviews and evocative visuals, the film captures both the resilience and struggles of his life.

The challenge was to authentically convey Benny’s experience while connecting it to broader themes of awareness and healthcare innovation. Making the unseen struggles of rare diseases relatable and concrete was central to the project’s mission.

We let Benny’s story shape the film, weaving his words, experiences, and artistic expressions into a narrative that reflects both the personal and collective dimensions of living with a rare disease. The focus on tangible moments ensured the story resonated deeply with audiences.

The film raised awareness about the realities of rare diseases, making their impact more relatable and understood. As part of POLITICO Studio and Sanofi’s campaign, it contributed to meaningful conversations about inclusion, care, and the human experience of living with rare conditions.

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